Patient-reported outcomes: descriptors of nociceptive and neuropathic pain and barriers to effective pain management in adult outpatients with sickle cell disease

DJ Wilkie, R Molokie, D Boyd-Seal, ML Suarez… - Journal of the National …, 2010 - Elsevier
Despite frequent episodes of severe recurrent pain in sickle cell disease (SCD), sensory
pain in outpatient adults with SCD lacks sufficient characterization. Furthermore, pivotal
barriers may interfere with these patients' adherence to prescribed analgesic therapies but
have not been studied systematically. We describe sensory pain characteristics, barriers,
and analgesic use reported by adults with SCD during routine clinic visits. Patients (N= 145;
67% female, 94% African American) completed measures on a pen-tablet computer …